Kansas Lyme Fighters, Inc.

An Affliliate of the Lyme Disease United Coalition

Inside the Lyme Epidemic


Why do doctors refuse to test for Lyme disease?

Why do major medical centers and most doctors refuse treatment with long term antibiotics...when it helps me feel better?

Why are the current Lyme tests unreliable for diagnosis?

Why do insurance companies refuse to pay for my medicine after 30 days?

Why do doctors, Emergency rooms, neurologists say I need psychiatric help, when I am really sick?

What is going on?

http://www.cureunknown.com

Overcoming Suffering Through Friendship, Thanksgiving, Courage, and Joy.

Photos

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Need Medications?

Need Medications?
To apply call toll-free 877-296-HOPE (4673),or go to http://www.prescriptionhope.com

LYME LIGHT PODCAST CREATED by Scott Dawson


Click below, sign up, place Lyme Light in the search box. Go to Lyme Light. Play, Listen to the podcast!
http://www.podbean.com

Doctors Speak Out about Lyme Disease

Meanwhile, as the number of Lyme sufferers continues to climb by double-digits the silence from both the CDC and mainstream medicine is deafening. If the CDC reported an increase of 77% for AIDS, wouldn’t it be on the cover of every newspaper and medical journal in America? So what’s going on with Lyme disease?" quote from Under Our Skin


IDSA WEBCAST VIDEOS OF JULY 30, 09 SEE YOUR DOCTORS DEFENDING YOU IN THE POLITICAL WAR AGAINST Long Term Antibiotics which work to heal Lyme Patients! Lyme disease is not easily treated in 10-28 days, states our ILADS Physicians! New, original research proves ILADS lyme disease guidelines are best practices for care, and are legal for use by physicians treating Lyme Disease!

http://www.ilads.org/lyme_disease/lyme_slides.html

http://webcast.you-niversity.com/idsaArchives/

See Videos of Physicans Presenting at
http://www.lymedisease.org/media/video_Volkman.html

http://ilads.org/lyme_disease/lyme_videos.html

http://www.ctlymedisease.org/videoclips.htm

IDSA MISSES DEADLINE TO REWRITE the guidelines which "mislead clinicians and lead to poor patient care." Millions of lyme patients are unable to access to medical testing and treatment that works!

http://underourskin.com/blog/?m=201001

Douglas County Crisis Talk

785-841-2345
If you need to talk.
Open 24/7

Latest Activity

Jeannette Schafer is now a member of Kansas Lyme Fighters, Inc.
Welcome Them!
on Saturday
Peninah added 2 groups
on Thursday
Peninah commented on Peninah's event 'LDUC (Lyme Disease United Coalition) Newsletters'
Feb 2010 LDUC Newsletter.pdf
February 2
Peninah updated an event
February 4, 2010 to February 4, 2013
Below are the newsletters and brochures. Feel free to print a copy as needed. The Lyme Disease United Coalition is an all volunteer 501 (c) (3) corporation-tax exempt. The mission of the Lyme Disease United Coalition (LDUC) is to advocate for pati…
February 2
Peninah added an event
Action Alert! Attend Rally to Support Dr. Charles R. Jones! at RALLY- Outside the CT Department of Public Health
February 16, 2010 from 11am to 1:30pm
PHYSICIAN FREEDOM! ATTEND THE RALLY IN SUPPORT OF DR. CHARLES R. JONES AND ATTEND THE CONNECTICUT MEDICAL BOARD HEARING. WHEN: RALLY- Tuesday, February 16 at 11:00 AM HEARING- Following the Rally which is currently scheduled for 1:30 PM the same d…
February 2
Peninah updated an event
October 15, 2010 to October 17, 2011
The 2010 annual Physician scientific session is scheduled on October 15-17, 2010. This conference is intended for Physicians. It is taught at this level. The next annual ILADS (International Lyme and Associated Diseases Society) conference will be…
January 31
Peninah updated an event
Greater Kansas City Lyme Disease Association and Newsletter at St. Joseph's Hospital Community Center, KS,MO
February 25, 2010 from 6:30pm to 9pm
Hundreds of callers have been helped through the hotline. Monthly meetings are scheduled the fourth Thursday of each month at 6:30 p.m. (except November and December) at St. Joseph's Hospital Community Center, Kansas City, MO at I-435/State Line Rd.…
January 31
Peninah added an event
January 31, 2010 to February 28, 2010
Lyme disease film "Under Our Skin" UNDER OUR SKIN is featured in PEOPLE MAGAZINE as a "Movie Pic," calling the Lyme film "part medical drama, part detective story, part whistle-blowing expose." Check out page 40 of the current issue!
January 31

Groups

 

Members

  • Jeannette Schafer
  • Hauna Payne
  • Marjorie Brooks
  • Sara
  • Fran Davide
  • Alicia Ward
  • Casey O'Brien
  • Sharon Rainey
  • Susan Ramos
  • Jeannette Bartelt
  • Anna Willo Hart
  • Jerry Lee Hollon II
  • Rose
  • Annette Copeland
  • Lazar Kostic
  • Bev Yost
  • johnnylight
  • Cari T
  • Jen Thomas
  • Sally Finck
  • Lorraine Hart
  • logan farmer
  • Tammy Farmer
  • Kelsey Griest
  • Rhonda Keen
  • Katherine
  • elaine finn

Blog Posts

Peninah

Chronic Fatigue and low body temperature

Posted by Peninah on January 21, 2010 at 9:00pm

Peninah

Body Brushing for Detox

Posted by Peninah on January 9, 2010 at 10:30am

Lorraine Hart

How our song "The Suffering of Lyme" came to be.

Posted by Lorraine Hart on August 31, 2009 at 3:59pm — 2 Comments

Johnnylight

Lonely Lyme

Posted by Johnnylight on September 23, 2009 at 8:01am — 2 Comments

Sara

Some of my story.

Posted by Sara on January 1, 2009 at 12:00am — 2 Comments

Music

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Forum

Peninah

HELP: Lawrence Journal World wants Information about Lyme Disease! Please read Judith's response here! 2 Replies

Started by Peninah. Last reply by Peninah Jan 17.

Melinda Murphey

bartonella 8 Replies

Started by Melinda Murphey. Last reply by Shelly Jan 9.

Peninah

The Stealth Killer: Is Oral Spirochetosis the Missing Link in the Dental and Heart Disease 1 Reply

Started by Peninah. Last reply by Shelly Dec. 24, 2009.

Peninah

John Hopkins University

Started by Peninah Nov. 23, 2009.

Peninah

New Virus Found May be Transferred from Ticks!

Started by Peninah Nov. 22, 2009.

Symptom Checklist

Checklist to see if you have the symptoms of Lyme Disease. Click on the pdf file below, and copy. Take to your doctor's visit.
Dr. Burrascano.pdf

Dr. Burrascano Treatment Guidelines, and Nutritional Information

TREATMENT GUIDELINES
Click on the files below, copy.
Burascano%20Guidelines%2008[1].pdf

Nutritional_Supplements.pdf

Dr. Burrascano is a lyme fighting doctor who has helped thousands of people gain access to care for Lyme Disease. Feel free to download a copy of his guidelines and take to your doctor. Ask your doctor to consider Paid Physician Training from the International Lyme and Associated Disease Society at http://www.ilads.org

Alternative Therapies: Protocols
http://www.lymediseaseresource.com/Protocols.html

Journal of American Physicians and Surgeons Volumn 14 Number 3 Fall 09 "The Need for Clinical Judgement in the Diagnosis and Treatment of Lyme Disease," by Elizabeth L. Maloney, M.D. http://www.jpands.org/vol14no3/maloney.pdf

Events

January 13

Wednesday

January 21

Thursday

January 23

Saturday

January 31

Sunday

February 4

Thursday

February 16

Tuesday

February 22

Monday

February 25

Thursday

March 13

Saturday

October 15

Friday

Videos

Crucial differences between IDSA and ILADS guidelines

Crucial differences between IDSA and ILADS guidelines"The IDSA and ILADS guidelines most clearly diverge in cases of persistent, recurrent, or refractory Lyme"
http://www.lymeproject.com/lymenews/lyme_disease_interview/15.html
Clinician reviews The Lyme Wars: Debate Rages About Treatment
"Who knew a little tick could cause so much trouble? When Lyme disease was first described in 1977, did anyone suspect that three decades later, a battle would be raging between two professional organizations about how to treat it? Today, the "war" between the Infectious Diseases Society of America (IDSA) and the International Lyme and Associated Diseases Society (ILADS) leaves clinicians wondering whose guidelines they should follow."
http://www.lymeproject.com/lymenews/lyme_disease_journals/17.html

RSS

Actress Parker Posey Talks About Her Battle with Lyme Disease

Lyme disease film ''Under Our Skin'': UNDER OUR SKIN makes the Oscar “short list

Swine flu: How not to be stupid

Remembering Leslie Wermers. One year ago today.

Suspect with Lyme disease found unfit for trial

The sick role and Lyme

Under Our Skin to show in Denver, with Dr. Martz Q&A

Living with Lyme: Long, often debilitating treatment flouts IDSA 'guidelines'

A Lymie's review of the movie LymeLife now on DVD and BluRay

It Bit My Wife

RSS

News From Dr. Brian Fallon at Columbia University’s Lyme Clinic

Antibiotics: A Dirty Word or Miracle Cure for Chronic Lyme Disease?

Hyperbaric Oxygen Chambers

Violence and Lyme Disease

Honey And Cinnamon For Chronic Lyme Disease?

A New Vaccine For Lyme Disease From Tick Saliva?

More To Fear From Those Who Are Sworn By Oath To Provide “Aid”

Who Can We Trust?

New Diagnostic Test For Lyme Disease?

Personal Journey Using Teasel For Chronic Lyme Disease

 
 

About

Peninah Peninah created this Ning Network.
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International Lyme and Associated Diseases Society for Physicians

Canadian station, CTV W5 News, interviews two individuals with Lyme disease

ILADS, Chronic Lyme Community Cautiously Optimistic after Landmark Hearings

ABC Debate heats up over Lyme disease

Hearing on Lyme went well, AG says

Rodale.com coverage IDSA hearing

Lyme: What's The Right Course?

'Lyme Rage': Can Lyme Disease Affect Your Personality?

Lyme Disease Guidelines Revisted

IDSA hearing July 30, 2009

Chronic Lyme Disease Controversy

Hope Line (For ages 13-24 years old)

Open
Sun-Thurs 8 pm-6 am
Fri-Sat 8:00 pm-1 am
1-800-394-HOPE

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Lyme Project

'Lyme Rage': Can Lyme Disease Affect Your Personality?

Dr. Cameron to speak at IDSA hearing

Lawmakers challenged with Lyme Disease

Psychiatric manifestations of Lyme disease in the news

Call to protect a physician's freedom to practice medicine

Lyme fighter and a Minnesota support group leader passes 11-02-08

New Lyme Doctors to be trained by ILADS

Dr. Cameron calls for dialogue

Dr. Cameron one of Top Doctors 2008

ILADS elects president

Under Our Skin Movie Documentary

While Oscar Fades, Fargo awards UNDER OUR SKIN top prize

Lyme film featured in People Magazine

More Delays in Lyme Guidelines Revisions

UNDER OUR SKIN in Tribeca Oscar semifinalists screening

UNDER OUR SKIN makes the Oscar “short list”

Lyme patients abandoned: Letters from “Under Our Skin”

Top LA Times awards critic Tom O’Neil roots for UNDER OUR SKIN

Save Dr. Charles Ray Jones, Lyme Pediatrician

Report from Portland screening

What’s Under Our Skin? New research on Lyme biofilms

Notes

Lyme Disease Resources

Created by Peninah Nov 16, 2008 at 10:13pm. Last updated by Peninah Jul. 21, 2009.

 

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